Category Archives: Uncategorized

A break.

“To pay attention, this is our endless and proper work.”― Mary Oliver August is just around the corner. For a few years, I had been following a person who went “off the grid” in August. Locked his phone in a … Continue reading

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Down syndrome, an update.

When Mia was a wee babe, I interviewed an author who had written about her experiences with her young son. It was a memoir about the early years with a child with Down syndrome. I asked her a question – … Continue reading

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Chapter “I dunno, I just like this part.”

I remembered going to the beach with her. It was always the beach. As we would approach the ocean, my mother would roll down the windows, and the salt air would fill the car and brush my face, whipping my … Continue reading

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A little writer monkey writes fiction

I have started dozens and dozens of books. And I always get stuck somewhere in the process. But I was thinking about all the stories I put in the box for “someday.” But why not share? I don’t know if … Continue reading

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Extremely low. IEPs: A Love Story

“The moment you doubt whether you can fly, you cease for ever to be able to do it.” ― J. M. Barrie, Peter Pan Every year, Mia’s school team meets to develop and discuss her Individualized Education Plan (IEP). And … Continue reading

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Uncertain.

“Hope is the thing with feathers That perches in the soul And sings the tune without the words And never stops at all.” ― Emily Dickinson How many times have I typed uncertainty this week? Too many. Tomorrow is World … Continue reading

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Fear. Love. Disney.

“Buy the ticket, take the ride.”- Hunter S. Thompson Last week, the kids and I took a trip to Boca Raton and then a Disney Cruise out of Miami. I showed lots of lovely photos of the fun we had, … Continue reading

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Independent.

There is freedom waiting for you, On the breezes of the sky, And you ask “What if I fall?” Oh but my darling, What if you fly? ― Erin Hanson Over the course of the fall, I’ve had one thing … Continue reading

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Welcome.

I was thinking the other day that I’ve been writing in this blog for about ten years. A lot has happened since my first silly post in 2009. A lot. And maybe if anyone new were reading this, I thought … Continue reading

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First grade.

When Mia was a tiny baby, I’d hold her, look into her sleeping face, and wonder who she would become. I had almost no experience with Down syndrome, so those thoughts were very much wrapped up in fear. I once … Continue reading

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