I have discovered in life that there are ways of getting almost anywhere you want to go, if you really want to go. ― Langston Hughes
Its a little early in Mias life to figure out her personality. She doesnt cry much. She is a little fussier than her brother was when he was her age. Although, those who knew Fynn as a baby are thinking, Shes probably still pretty good since Fynn was the magic baby who never cried. So, yes, she is still pretty easy. She loves to snuggle and she loves to move.
When Mia was born, she had what many children with Down syndrome have hypotonia or low muscle tone. It basically means that if you pull on her limbs she has very little resistance. Also, when you would pick her up, she was like a rag doll. The only real treatment for this problem is lots and lots of physical therapy and opportunities for exercise.
You can imagine that this could be a pretty significant challenge in a newborn, especially one with other potential developmental issues. You can put children on their tummies all day every day and bug them until they cry, but if they dont move or try to lift their heads, theres not a lot you can do. Encourage, encourage, encourage that is all. Of course, this was something I worried about especially when you hear stories of children with Ds not walking until age five.
Enter Ms. Mia Katarina. Her middle name is a derivative of Katherina the shrew from Shakespeares Taming of the Shrew (one of my favorite plays), and she seems to have taken on one very important characteristic of her namesake shes headstrong. She has a stubborn determination that is quite impressive. Im sure Ill rethink this choice of name when shes 16.
She definitely does not just lie there like a dish rag while on her tummy. She spends the entire time wiggling, kicking, pushing her head up, and even trying to roll over. She rarely cries. Usually it means shes finally exhausted. My daughter impresses me every day. She started from nothing 6 weeks ago, and all of her hard work and determination are paying off. Shes reaching milestones something that we didnt know when or if it would happen.
Were having a lot of wins now, and Im thankful for that. It wont always be the case. But even if she doesnt walk until shes five, I know it wont be from a lack of determination.
I wish I had half the determination that this little girl has. I watch her and think I complain about an awful lot of things that are completely within my control to change. The New Year is coming up, so Im thinking about losing the baby weight, getting in shape, getting organized, reading more, and numerous other dumb little resolutions. There are a lot of things that are completely out of this little girls control. She was dealt a difficult hand. Im not sure what is inside her that is making her work this hard when she could just lie there instincts, personality? Does that go away as you get older? Will it ever go away for her? I dont know.
But what I do know is this – in six weeks, our little newborn has taught us that if theres a will, theres a way. I’m excited to see what she does next. And in the meantime, I should stop making excuses.